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Sara Ader Chuckle EventOn behalf of our Executive Board and Advisory Council, I would like to welcome you to our newly redesigned website. Our Web development team has worked hard to make this site visitor friendly and informational. We invite you to explore our site to learn more about our mission, what we do and how you can help. We welcome your comments and suggestions.

For more than a decade, I have had the pleasure of working with the Children’s Melanoma Prevention Foundation, an organization completely dedicated to educating children and their caregivers about preventing skin cancer. We can proudly say that we have reached more than 1 million students of all ages with our award-winning, age-appropriate, curriculum-based school programs. We continue to expand our capabilities to reach children and their families all over the world with our online programming and resources.

I hope that what you learn on our site will inspire you to join us in supporting our mission to prevent skin cancer, one child at a time. Sara Mason Ader  (Board Chair)

ANA 4.6.18Community Service for Maryellen Maguire-Eisen, founder and Executive Director of the Children's Melanoma Prevention Foundation (CMPF), is a form of paying it back. You see, when she was a young nurse her mother developed a “changing” mole on her neck. She showed it to two physicians both of whom told her not to worry because it was a mole that she had her whole life. Soon after, a friend and dermatology resident came to dinner and spotted the melanoma and arranged for treatment. Maryellen has shared that although a nurse herself, she didn’t even know what melanoma was. She soon came to realize just how important this incidental diagnosis was since her mother survived for another thirty years. Maryellen went on to a career in oncology nursing and obtained her master’s degree at Simmons’s College in 1990. Her thesis, Nurse’s Knowledge of Melanoma and How it Relates to Clinical Practice was done under the direction of Dr. Judy Beal and was her first real attempt at paying it back.


Maryellen worked as a nurse practitioner in dermatology prior to starting the Children’s Melanoma Prevention Foundation in 2003. The foundation’s mission is to prevent skin cancer one child at a time through education and advocacy. Because she believes that skin cancer is the one cancer where nurses can truly make a huge difference she sought out other nurses to help with the foundation’s mission. In 2017, CMPF was recognized by the Center for Disease Control for partnering with nurses to promote the Surgeon General’s Call to Action to Prevent Skin Cancer.


CMPF developed their signature SunAWARE National Curriculum and Community Initiative to raise awareness and teach sun protection and skin cancer prevention to children and the people who care for them (parents, coaches, healthcare professionals, etc.). The program is designed to be fun and informative, as well as interactive. The foundation’s SunAWARE educators have directly provided the SunAWARE Program to over one million children and adults in schools and the community both locally and nationally. All programs are provided free of charge with the support of corporate and individual donations.


Maryellen oversees a dedicated staff, board of directors, and advisory council. In addition, Maryellen has sought out and partnered with numerous organizations including the Dermatology Nurses’ Association (DNA), MA Association of Public Health Nurses (MAPHN), the MA Department of Conservation and Recreation (DCR), US Sailing, and others. Through their Boston Harbor SunAWARE Project, CMPF was able to collaborate with the National Park Service to provide education and sunscreen for thousands of visitors and tourists along with onsite community education.
CMPF is actively involved in community and legislative advocacy. CMPF was instrumental in advocating for the Massachusetts indoor tanning ban for minors signed into law by Gov. Baker in 2016. This year, CMPF is championing and supporting bills that will allow children to bring sunscreen to school without a doctor’s prescription or note.


Community service is at the root of CMPF’s mission and Maryellen couldn’t be more proud of the small role that she has played in “preventing skin cancer one child at a time”.

katie at hatherly 3Spring is just around the corner and now is the time to decide that you will advocate for sun protection policies at your child’s school. Research, make a plan, talk with administrators so you will be ready to protect students once the UV Index starts to rise in March. Here are some suggestions as to what you can do at a local, state, and national level to protect children from the most common cancer in our society.

Local level: Parents can help develop sun protection policies within schools that do not necessarily require changes in legislation. These policies can reflect the 5 easy action steps found in the SunAWARE acronym. Use the SunAWARE acronym to help design programs and policies that cover all the steps needed for protection and detection. Using SunAWARE as a framework can be helpful when developing policies and programs because it includes primary and secondary prevention efforts. Please feel free to contact CMPF, if you have questions.

Be Safe. Be SunAWARE.

School Suggestions:

➢ Schedule a lecture on sun protection for the Parents Teacher Organization.
➢ Initiate a shade committee, e.g., shade for playground.
➢ Help raise money for the purchase of sun protective hats and sun protective sports uniforms.
➢ Provide sunscreen reminder notes to parents before outdoor field trips.
➢ Distribute our SunAWARE infoflier, available for free download.
➢ Provide tips for better sun protection during recess or at sports events.
➢ Consider sending out a sun protection newsletter.

State level: Parents can help change legislation that directly affects sun safety for their children at school or day care. Support the pending Sunucate legislation that allows children to bring sunscreen to school*. This can include initiating the funding for providing skin cancer prevention education, allowing hats to be worn at recess or during outdoor sporting events, and allowing children to use sunscreens during school hours.

National level: Parents can lobby for a national skin cancer prevention campaign, using the SunAWARE Program, that is similar to campaigns against smoking and illegal drug use.

References:
Center for Disease Control and Prevention Guidelines for School Programs to Prevent Skin Cancer: https://www.cdc.gov/cancer/skin/pdf/sunsafety_v0908.pdf
(CDC has published specific and detailed guidelines for parents who want to work with schools to create sun protection policies. These guidelines outline recommendations for sun policy changes, environmental changes, education programs, family involvement, professional development and evaluation. Read them, make copies and give them to your school principal).

*An Act reducing the risk of skin cancer and excessive UV exposure in children: https://malegislature.gov/Bills/190/S1196
*An Act relative to the availability of sunscreen for students: https://malegislature.gov/Bills/190/S229
*An Act relative to student sun safety: https://malegislature.gov/Bills/190/H2055

As a new mom to a one-year-old boy, my biggest priority is making sure I am constantly keeping my son safe and healthy! Since we live in South Florida, it’s extra important to me to keep him protected from the sun’s harmful rays while enjoying our year around warm weather. I had no idea that babies were not able to wear sunscreen until they were 6 months old. When I found that out, I decided to take extra precautions to keep him sun safe. I have put a list together of a few of my favorite baby and mom approved items that are stylish and perfect for keeping your little ones safe from the sun.

Stoke lateral view

My first must have on the list is a stroller that blocks UV rays. I love the Stokke strollers as they are very versatile and are comfortable for baby and mom. When I found out they had a summerkit, I purchased it imediately! It came with a hood, seat rail cover, rear textile cover, sun sail, and terrycloth seat liner. The fabric is made to wick way moister and keep them cool on warm days. It also contains UPF 50+ to protect their sensitive skin. My favorite feature of this kit is the sun sail, which covers your baby from direct sunlight while still managing to provide a well-ventilated environment. If you live in cold climates, they also sell a winter kit, which protects baby and mom from the harsh winter weather. This kit offers built in hand mittens for mom, faux fur lining, and a down sleeping back for when temperatures plunge. 

Moms pack

The second item on my list is a covered area for outdoor playtime! I love taking Jameson outside to play, but I don’t want him crawling on the dirty ground or being exposed to direct sunlight for prolonged periods of time. While at the beach, I have seen many families with tents for their children to play in. If you purchase a tent, be sure to check for reflected light. The sun’s UV rays can reflect off the sand and cause sun damage. With this in mind, we chose to bring our 4Moms pack n play to the beach and purchase a giant umbrella to cover the top of the pack n play. It allowed for the breezy weather to keep him cool in the summer heat and was easy to set up!

 

While spending anytime outdoors, proper clothing is a must! I always make sure Jameson is wearing sun protective clothing whenever we are spending time outdoors or at the beach. Hats, sunglasses, and long sleeve swimwear should be worn at all times. When choosing hats, remember that the wider the brim the more protection. Be sure that hats are also waterproof and comfortable. My favorite hat for swimming is Jameson w sunglassesSwimlids. Target also offers a few great options as well. They stay on and are comfortable for children. Sunglasses are just as important for babies as they are for adults! The sun’s rays are strong and can harm your baby’s sensitive eyes. I love Babiators! They offer 100% protection from UVA and UVB rays and are bendable so they are not easily broken. Sun protective clothing is also extremely important and should be worn over sunscreen. I like long sleeve options to protect his arms. My favorite brands include Cat & Jack at Target, SnapperRock, and Radicool. Each of these brands offers stylish options! Make sure to always protect your baby’s feet. They are often exposed and hard to cover. Mudpie socks stay on well.

One of the most important tips is to always use sunscreen for babies older than 6 months! My favorite sunscreen is Neutrogena’s Pure and Free baby sunscreen. It features a 100 percent zinc oxide sunscreen formula, which is proven safe and effective for baby’s sensitive skin. It is also free of harmful chemicals, phthalates and parabens, and as a mom, I always try to use natural products whenever possible. I like to use the squeeze bottle for applying sunscreen on his body under sun protective clothing, and the sunscreen stick for application on his face. Be sure to reapply every 2 hours and to cover every bit of exposed skin including ears, toes, fingers, neck, and ears! For babies under 6 months, be sure to speak with your pediatrician before using sunscreen.

Last but not least, protect your baby while in the car! Many people forget that the sun’s harmful rays can easily penetrate windows. Whether you are trying to get your newborn to sleep with a long car ride around the neighborhood or just running errands in the afternoon, protect them by using a window shade. Britax EZ-Cling Sun Shade provides UPF 30+ and keeps the sun out of babies’ eyes when they are trying to nap.

Teaching healthy habits start at a young age! Make sure you are an example to your children of what it means to have a healthy relationship with the sun and practice what your preach.

Maura TeachingBook Your SunAWARE School Program Today!

Our SunAWARE school curriculum is based on five action steps: Avoid unprotected UV exposure and never indoor tan, Wear sun protection clothing, Apply adequate amounts of SPF 30+ sunscreen, Routinely examine your skin for changes, and Educate others. The SunAWARE acronym incorporates both sun protection and skin cancer detection components. The curriculum meets or exceeds the Massachusetts Curriculum Frameworks and National Common Core Standards as well as the Next Generation Science Standards.

Renee w GranpaRenee Crown 1Melanoma prevention is more than just a cause to me; it is a passion that has expanded as a result of a personal experience with the disease. When my grandfather passed away in 2008 from melanoma, I witnessed first-hand the devastating effect this horrible disease has on both victims and their loved ones. Soon after his passing, I learned that melanoma is almost 100% preventable. I vowed then to make it my mission to raise awareness of this deadly cancer. My family and I became involved with fundraisers and 5Ks to raise money for melanoma awareness in our community.

A few years later, I became interested in the Miss America organization. As a fifth-grade Girl Scout, I had met Miss Massachusetts 2008. Each young woman who participates in a Miss America Scholarship Organization pageant chooses a platform, or a cause, they feel passionate about. As I listened back then to Miss Massachusetts speaking about her platform of body image awareness, she made a lasting impact on me and my peers. I knew immediately that I wanted to become Miss Massachusetts myself someday. My first step toward reaching that goal was to participate in the Miss Massachusetts’ Outstanding Teen pageant as a freshman in high school, and I chose my platform to be melanoma awareness. I named it “Melanoma Awareness: Educate. Demonstrate. Terminate.”

The Miss America organization served as an avenue for me to spread my message to a broader audience. I held a fundraiser to collect funds for educational materials to distribute to my former high school. Now, students at my alma mater are learning about melanoma in their health classes. I also created my own skin safety program for preschool and elementary school children. I aimed my outreach at children because they are so trusting and they truly listen to what they are taught. I knew that if I told them that they could get wrinkly by not wearing sunscreen, they would definitely wear sunscreen, and probably would convince their parents and families to do the same.

I have presented my skin safety program to many groups of children around the state, including Girls Scout troops, Boy Scout troops, preschool classes, school-age classes, library groups, etc. It is surreal to me that just as Miss Massachusetts visited my Girl Scout troop and taught me about her platform, I am now visiting Girl Scout troops and teaching them about my platform. Seven years after I first became motivated to achieve my goal, I am still working toward becoming Miss Massachusetts and I am amazed by how much this organization has helped me raise awareness of my platform.

I am very excited about my new partnership with Children’s Melanoma Prevention Foundation and this wonderful opportunity to expand my platform even further!

Sun, Mr. Golden Sun Please shine down on me!

natalie Mr. SunHe is one of my closest friends. I sang about him in Barney songs and basically grew up with him by my side. He was all around me. Every day after school, my family would go to our cabana at The Breakers on Palm Beach and spend countless hours with him. Wherever I went-to the pool, the beach, the playground, nature walks with my dad-he was always there too. I would do my homework and then set out for whatever adventures lay before me in paradise.

He has been there through it all. All of my best memories from my childhood, adolescence, and now into adulthood are with him. He is home! He is literally everything I miss about home and the reason why I cannot stand the gloomy Northeast. He makes me feel better about myself-skinny, glowing, and beautiful. His personality is every color of the rainbow. He comes in through the window and fills any room with his booming personality. But he can make you feel cold and sad too when he is not there. I love him. I loved everything about him-he gave me meaning as a girl from the Sunshine State. Imagine that? A whole entire state named after him, that’s how loved, adored, and desired he is - there is no other place I would call home. His kiss was sweet-and it was not just a small kiss, but a kiss all over, and though fleeting, the memory of it is everlasting.

No matter how sweet he may be, though, or how happy he made me, or how many memories we shared, he would always burn me. He taught me to never fully trust anyone, no matter how you feel about their presence. But this took a long time to realize. Almost two decades, as a matter of fact. Mr. Sun and I recently went through a rough patch in our relationship. He stabbed me in the back and did something I just never thought would happen to me. His kiss and his burns became a cancer. He betrayed me in the worst way possible. How could he do this to me? We had always been there through it all together. He was my constant companion. His warmth set me free, but now he just felt cold and mean.

Scars are a constant reminder of where we have been and the trial and tribulations we have overcome, whether they are metaphysical or real. This was real. I have never felt a pain like this in my life. I could feel the burn in every part of my body-it was the most painful, eye opening experience of my life. I couldn’t walk for almost two months. I couldn’t bend over, go to the bathroom, sit, stand, bath, without pain. It took over me. Recovering from what he did to me was hard. He has humbled me and made me feel like less of a person. He took something away from me. He has robbed me of youth-it is something I will never get back, but something I have learned to get over. My mortality has become real to me-I have learned the hard way that I am not invincible. It was silly to trust him.

Someone I trusted to never hurt me, or slowly kill me for that matter, did the unthinkable. Sure he had done it to others before, still does it now, and will continue to harm those who are not wary, but me? Yea, right. In a million years I would have never thought my friend would do this to me.

But we always come back. Letting go of our relationship has been rough-I saw him in Punta Cana over spring break. He begged me to just soak in his warmth a little bit. I missed him-his touch, his kiss, the way he made me feel about myself, so I let him, and I got burned yet again. My parents yelled at me for seeing him. How could they not after what he did? I still miss him though, and wish we didn’t have to part ways so early in life. His friends try to give me the same feeling, but it is just not there. He is so natural and ever present, that I can’t replace him.

They say that time heals all, and that is true of some things, such as the scars he has left me with, but I believe that the many years we have left of trying to avoid each other will be an uphill battle. Our love-hate relationship may continue, but I refuse to get stabbed in the back by him again.

The Friday before Memorial Day annually has been designated as Don’t Fry Day (DFD) by the National Council on Skin Cancer Prevention (NCSCP). This day was chosen because Memorial Day is the unofficial kick-off of summer. It is a program that encourages sun smaura proclamationafety and reminds everyone to protect their skin while they enjoy the outdoors. As one of 41 member organizations of NCSCP, the Children’s Melanoma Prevention Foundation participates annually in activities aimed at promoting sun safety awareness through the Don’t Fry Day message. We encourage school projects and embark on a social media blitz to disseminate the DFD message.

This year, as part of our advocacy efforts we decided to approach the Massachusetts State Legislature. Because it was too late in the legislative cycle to propose a bill, we chose to request an official proclamation that would be issued by the Governor.

As someone who is deeply involved with policy and government affairs I have a very good relationship with my State Senator and Representative. I called the offices of both State Senator Jamie Eldridge and State Representative Kate Hogan and spoke with their staff about my request. I want to stress here that one of the most important things to remember is that legislative staff are key players. They are knowledgeable and in some ways, it is more important to make a connection with them than the members themselves. I always advise those who are new to advocacy to form those relationships and not to be disappointed that they “only” get to meet with or speak to staff. They are the worker bees who get stuff done.

DFD kids1After speaking with staff, the next step was to send the request in writing. This does not have to be a formal letter; email is generally the best way to communicate with any government official.
When writing to your legislator, it is always advisable to begin by thanking them for their previous support. If you have never brought any issues before them you can look up their voting record, find an issue they voted for that is important to you, and thank them for their vote.

In this case both Senator Eldridge and Representative Hogan had supported the Massachusetts under 18 tanning ban bill , so of course I referred to that as a perfect segue. Representative Hogan is the House Chair of the Joint Committee on Public Health and we testified on behalf of the bill before her committee. She was very supportive and instrumental in moving the bill forward.

Included in my email was background information on the Don’t Fry Day initiative and documents about the importance of skin cancer prevention along with my request. The staff took it from there. They contacted the Governor’s Constituent Services Aide who requested that I draft the language for the proclamation and send it to her directly. The Governor’s website has instructions and gives examples to aid in drafting this document: http://www.mass.gov/governor/constituent-services/recognition/#proclamation

After drafting the language and submitting it, I followed up with the Governor’s office to be certain that the proclamation had been accepted. I spoke with the staffer who had been my contact and she told me that the proclamation would be ready in a few days. I could choose to pick it up, have it mailed, or receive an electronic copy. Taking no chances, I chose to pick it up in person and it now hangs in the CMPF headquarters.

This year I have asked these legislators to introduce a petition making this an official event yearly. It is unlikely that any bill passes the first year it is introduced. So, while the bill is pending we will continue to seek a proclamation each year. It is our hope that Don’t Fry Day will be added to the official Massachusetts calendar in the near future.

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OMG, that's frightening! Our motto is to prevent skin cancer one child at a time and not to make the sun the enemy. However, UV reflectance photography Quincy High Girlsprovides a powerful personal snapshot of pigment change related to sun exposure. Because the camera system shows melanin deposits not visible to the naked eye it raises awareness about sun damage and the importance of sun protection.

For over a decade, we have used UV reflectance photography in our SunAWARE Program to educate children about skin cancer prevention. Children can clearly visualize their own skin and determine if they have sun damage. We remind children that they are not born with freckles but rather a genetic predisposition to develop freckling. We stress that melanin deposits develop at sites of excess sun exposure. We teach younger children that they need to give extra special attention to all areas where they have freckles. With older children, we educate them that freckles are a sign of sun damage and imparts an increased risk for skin cancer. We use this technology to drive home the importance of sun protection including sunscreen, hats, sunglasses, and shade to protect the skin and prevent further damage

Our very affordable and effective camera systems includes a newer model DSLR reflex camera adapted for UV reflectance photography by Life Pixel. We use the video mode for the demonstration and mount an 8-inch monitor on the hot shoe for enhanced viewing. Outdoors direct sunlight provides enough UV for imaging. For indoor programs, we use black lights for our UV light source. They are available online or at party stores. The black lights work by eliminating visible light while transmitting UV light. We position the black lights on either side of the subject.

Another benefit to UV reflectance photography is that it allows us to demonstrate proper sunscreen application. Because chemical sunscreens absorb the UV rays they appear black on the skin. We provide the child with sunscreen and ask them to apply it and then evaluate their application. We then ask them to look in the camera to see if they have missed any spots. Areas along the hairline, around the eyes, or rims of ears are common spots that people miss when applying sunscreen. We also demonstrate that sunscreens with physical blockers, titanium dioxide or zinc oxide makes their skin look lighter because they work by reflecting UV radiation away from the skin.

With skin cancer increasing faster than any other cancer in the U.S. and one person dying every hour from the disease, our hope is that we can provide children and the people who care for them with a simple lesson about personal risk and proper sun protection.

Leveret UV Camera System

1. DSLR Camera (Rebel T5 i)
2. camera battery Canon LP E8
3. Canon lens 0.16 mm 0.52 ft 24 mm lens
4. HDMI Mini cable
5. Tripod
6. light stands (2)
7. reflectors with clamps (2)
8. 2 black lights (22 Watt CFL)
9. 8 inch monitor (Ikan VH8-E6)
10. Monitor Battery Canon LP E6
11. Fotyrig 7 inch magic arm
12. battery charger(s)
13. extension cord
14. Extra batteries
    a. Canon LP E6 and LP E8

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The National Institute of Health launched an online tool designed to help people distinguish moles from melanoma. The resource entitled, Moles to Melanoma: Recognizing the ABCDE Features, is intended to help educate the public about the appearance and features of common moles, atypical moles and melanoma.

The clinical photographs come from the National Cancer Institute’s Familial Melanoma Study. There are photographs of 29 different pigmented skin lesions collected from study participants over a forty-year period. Patient photos are shown over time, including illustrations of small moles that develop into melanoma. Dr. Margaret Tucker, the study chair and developer of the online tutorial, said that this tool would help people to distinguish normal changes in pigmented lesions from malignant changes requiring medical attention.

This is something for health professionals, patients, and the general public to use and learn about the clinical course of melanoma. Please check out https://www.cancer.gov/news-events/cancer-currents-blog/2016/moles-to-melanoma

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